A modern lifestyle brand redefining motherhood
Print Friendly and PDF

I think all good parents worry that one of their children is being shortchanged in some way. This fear increases exponentially when you have a special needs child.


Some days it feels as though everything is about Kevin – keeping him calm, keeping him happy, or keeping him from harming himself and us. There’s not a day, not a single moment, that I don’t worry my girls are being cheated.

We just returned from Universal Studios in Orlando Florida, and what an amazing place, especially for families with disabled children. We were able to bypass all the lines and, not only did the staff allow Kevin to choose his seat on every ride, they weathered each of his outbursts as if it was nothing out of the ordinary.

I planned this trip over a year ago for Dana. It was all for her. Dana is a bonafide “Harry Potter” junky, and I couldn’t be more proud of my self-proclaimed “nerd.” She has sorted each of us into our prospective “houses.” Chris, Papa, Kevin, and I are Hufflepuffs, Godmommy and Dana are Ravenclaws, and Kayla and Grammy are Gryffindors.

I know it won’t last. Puberty is just around the corner and, before I blink, I know the robe, wand, Ravenclaw T-shirts, and Marauder’s Map will be replaced with lipstick, Teen Vogue, and God knows what else. They told me years ago to hang on to every precious moment but, like many parents, I didn’t listen until two years ago when I finally saw her childhood slipping through my fingers.

Two years ago (she was 10), I thought Dana still believed in Santa Claus. I figured it would be the last year, so I planned a vacation to Disney World on Christmas Day. When the kids woke up, the only things under the tree were suitcases and an agenda written by Santa to Dana detailing every moment of the trip. It was all for her – this last Christmas I thought she believed.

We had a great time, but when we got home, Dana sat me down and said, “Mommy, I know it was you. I wanted to believe, but deep down, I knew it was you. Thank you.”

It was one of those moments when you can actually hear your heart break. She knew I did it all for her, she knew I loved her, but my baby didn’t believe in magic anymore. I became cognizant of every moment I’d lost, because I was so busy with Kevin.

This time I wanted things to be different. “Okay,” I thought. “She doesn’t believe in Santa, but she still believes in wizards and witches, so the magic isn’t gone!” This time, I let her plan everything down to the last detail and spent way more money than I should have, but it would all be worth it because for once, everything would be about Dana and what she wanted. For once, my darling girl wouldn’t be in second or third place.

We got home yesterday and, all in all, it was a great trip. But there were moments that nearly crushed me. Everything with Kevin is hard. There were meltdowns in the park where he hit us, screamed at us, bit us, and pulled our hair. There was a tantrum in a restaurant that silenced the whole place. It seemed a thousand eyes were bearing down on us with either pity or disdain.

There was the day he didn’t make it to the toilet in time and pooped all over the bathroom floor, and Dana had to bar the entrance to the men’s room while I cleaned the mess and Chris found new clothes.

I’ve taught my daughters to be honest about what our life is like, but sometimes the truth hurts. For example, our first day in was rough. Kevin was confused, overstimulated, and extremely agitated. After dinner, he finished his desert and then demanded Kayla give him hers. When she refused, he started screaming and hitting her.

Dana’s godmother, who isn’t used to seeing him meltdown like that, politely suggested we bring him outside, and Dana responded with, “Oh you’re embarrassed? Seriously?! Welcome to my life. I deal with this every day.”

Ouch. I’d never heard her say anything like that before. But it was the cold, hard truth, and I understood exactly how she felt.

Our last day we spent swimming in the pool. Chris and I were holding Dana when Kayla swam over to us. (Kevin was with Grammy.) We each put a girl on our back, and Kayla said, half-jokingly, “It’s like we’re a perfect family!”

Translation: We’d be a perfect family if only we didn’t have Kevin.

Then there was the day I caught Dana’s Godmother and my mother talking about me. “I heard you two!” I said jokingly. “What are you saying behind my back?”

But my mother put her head down as if making a confession and said, “I was just saying how, sometimes, when Kevin explodes like this, I just have to walk away it’s so hurtful to watch. I hurt for you and for him, and I just have to get away.”

Ouch, ouch, double ouch.

As wonderful as the late night talks with Dana’s Godmother were, one night she confessed to me, “You have a very hard life. I wouldn’t want it for myself.”

I must have asked Dana a million times in four days, “Is it everything you dreamed it would be?” Every time she replied with something along the lines of, “It is, Mommy, it really is, and if Kevin wasn’t here it would be perfect.”

I can remember thinking, “You know, Dana, all the honesty I’ve heard this week didn’t hurt quite enough. How about we get some lemon juice or salt or something?”

Which begs the question: “Rachel, have you done the right thing encouraging the girls (and everyone else you love) to be honest about their feelings? Shouldn’t you be responding to all these comments with something along the lines of, “Don’t say that about Kevin!”

Maybe.

I’m sure there are those who would say I’ve made a mistake allowing my girls to speak so freely about their feelings and thoughts, but you know what? They don’t have to live the way we do. We’ve had to survive things most people can’t imagine. So yes, we live by our own set of rules over here, and part of that is admitting you’d rather not get slapped in the face in line for “The Hulk” because Kevin wants to go first or telling strangers they can’t go into the bathroom right now because Mommy is busy cleaning poop off the floor.

My girls speak some harsh truths, truths heavy with anger and resentment, but we’ve all learned something the hard way: When you speak those truths, it sets you free to love when loving seems impossible.

I can’t count how many times (after she said she hated him) the following conversation took place.

Kevin: “I hit you!”

Dana: With all the empathy and patience in the world, “Please don’t hurt me?”

Kevin: “I want to!”

Dana: “Okay, Kevin, if it will make you feel better, you can hit me.”

Kevin: “Sawney.”

Dana: “It’s okay, thank you for making the right choice. Let’s go on another ride, you can go first!”

And Kayla, who said we’d be the perfect family if only it weren’t for Kevin and took more physical abuse than any of us, returned every blow with a firm hug while softly whispering, “It’s okay, buddy, I’m here, I’m right here,” as she held him.

What is it she always says? Oh yes: “Bad thoughts and feelings are like weeds, Mommy. You can’t pretend they’re not there. Pull them out by the root and let them die, or they’ll kill everything you’ve worked so hard to make beautiful.”

So we’re home now. Kevin has been so peaceful and pleasant all day, obviously relieved to be where things are familiar. I ask Dana to sit in my lap, and she agrees, which is rare. She’s almost 13 now, and sitting in Mom’s lap is sooooooooooooooooo not cool.

Me: “Why did we go to Universal?”

Dana: “Because you love me, and I love Harry Potter.”

Me: “What was your favorite part?”

Dana: “Getting my Godmother all to myself in Hogsmeade and Diagon Alley.”

Me: “Was it just like you dreamed?”

Dana: “Better.”

Me: “Do you still wish Kevin hadn’t come?”

Dana: “No, I was just mad. Sometimes you have to let yourself be mad or you’ll never be happy, right?”

Me: “Right. I’m sorry he takes up so much of my attention.”

Dana: “It’s okay. He takes up a lot of everyone’s attention, even mine.”

Me: “I love you.”

Dana: “I love you more.”

Me: “Not possible.”

We’re home. Dana is in her Ravenclaw robe, wand in hand, re-reading “The Order of The Phoenix” while munching on a chocolate frog. Her friend just texted to ask how the vacation went, and she replies, “The best time I’ve ever had in my whole life.”

The very best of Motherly — delivered when you need it most.

Subscribe for inspiration, empowering articles and expert tips to rock your best #momlife.

Already a subscriber? Log in here.

We spend a lot of time prepping for the arrival of a baby. But when it comes to the arrival of our breast milk (and all the massive adjustments that come with it), it's easy to be caught off guard. Stocking up on a few breastfeeding essentials can make the transition to breastfeeding a lot less stressful, which means more time and energy focusing on what's most important: Your recovery and your brand new baby.

Here are the essential breastfeeding tools you'll need, mama:

1. For covering up: A cute nursing cover

First and foremost, please know that all 50 states in the United States have laws that allow women to breastfeed in public. You do not have to cover yourself if you don't want to—and many mamas choose not to—and we are all for it.

That said, if you do anticipate wanting to take a more modest approach to breastfeeding, a nursing cover is a must. You will find an array of styles to choose from, but we love an infinity scarf, like the LK Baby Infinity Nursing Scarf Nursing Cover. You'll be able to wear the nursing cover instead of stuffing it in your already brimming diaper bag—and it's nice to have it right there when the baby is ready to eat.

Also, in the inevitable event that your baby spits-up on you or you leak some milk through your shirt, having a quick and stylish way to cover up is a total #momwin.

2. For getting comfortable: A cozy glider

Having a comfy spot to nurse can make a huge difference. Bonus points if that comfy place totally brings a room together, like the Delta Children Paris Upholstered Glider!

Get your cozy space ready to go, and when your baby is here, you can retreat from the world and just nurse, bond, and love.

3. For unmatched support: A wire-free nursing bra

It may take trying on several brands to find the perfect match, but finding a nursing bra that you love is 100% worth the effort. Your breasts will be changing and working in ways that are hard to imagine. An excellent supportive bra will make this so much more comfortable.

It is crucial to choose a wireless bra for the first weeks of nursing since underwire can increase the risk of clogged ducts (ouch).The Playtex Maternity Shaping Foam Wirefree Nursing Bra is an awesome pick for this reason, and because it is designed to flex and fit your breasts as they go through all those changes.

4. For maximum hydration: A large reusable water bottle

Nothing can prepare you for the intense thirst that hits when breastfeeding. Quench that thirst (and help keep your milk supply up in the process) by always having a water bottle with a straw nearby, like this Exquis Large Outdoor Water Bottle.

5. For feeding convenience: A supportive nursing tank

Experts recommend that during the first weeks of your baby's life, you breastfeed on-demand, meaning that any time your tiny boss demands milk, you feed them. This will help establish your milk supply and get everything off to a good start.

What does this mean for your life? You will be breastfeeding A LOT. Nursing tanks, like the Loving Moments by Leading Lady, make this so much easier. They have built-in support to keep you comfy, and you can totally wear them around the house, or even out and about. When your baby wants to eat, you'll be able to quickly "pop out" a breast and feed them.

6. For pain prevention: A quality nipple ointment

Breastfeeding shouldn't hurt, but the truth is those first days can be uncomfortable. Your nipples will likely feel raw as they adjust to their new job. This will get better! But until it does, nipple ointment is amazing.

My favorite is the Earth Mama Organic Nipple Butter. We love that it's organic, and it is oh-so-soothing on your hard-at-work nipples.

Psst: If it actually hurts when your baby latches on, something may be up, so call your provider or a lactation consultant for help.

7. For uncomfortable moments: A dual breast therapy pack

As your breasts adjust to their new role, you may experience a few discomforts—applying warmth or cold can help make them feel so much better. The Lansinoh TheraPearl 3-in-1 Breast Therapy Pack is awesome because you can microwave the pads or put them in the freezer, giving you a lot of options when your breasts need some TLC.

Again, if you have any concerns about something being wrong (pain, a bump that may be red or hot, fever, or anything else), call a professional right away.

8. For inevitable leaks: An absorbing breast pad

In today's episode of, "Oh come on, really?" you are going to leak breastmilk. Now, this is entirely natural and you are certainly not required to do anything about this. Still, many moms choose to wear breast pads in their bras to avoid leaking through to their shirts.

You can go the convenient and disposable route with Lansinoh Disposable Stay Dry Nursing Pads, or for a more environmentally friendly option, you can choose washable pads, like these Organic Bamboo Nursing Breast Pads.

9. For flexibility: A breast pump

Many women find that a breast pump becomes one of their most essential mom-tools. The ability to provide breast milk when you are away from your baby (and relieve uncomfortable engorged breasts) will add so much flexibility into your new-mom life.

For quick trips out and super-easy in-your-bag transport, opt for a manual pump like the Lansinoh Manual Breast Pump .

If you will be away from your baby for longer periods of time (traveling or working outside the home, for example) an electric pump is your most efficient bet. The Medela Pump In Style Advanced Double Electric Breast Pump is a classic go-to that will absolutely get the job done, and then some.

10. For quality storage: Breast milk bags

Once you pump your liquid gold, aka breast milk, you'll need a place to store it. The Kiinde Twist Pouches allow you to pump directly into the bags which means one less step (and way less to clean).

11. For keeping cool: A freezer bag

Transport your pumped milk back home to your baby safely in a cooler like the Mommy Knows Best Breast Milk Baby Bottle Cooler Bag. Remember to put the milk in a fridge or freezer as soon as you can to optimize how long it stays usable for.

12. For continued nourishment: Bottles

Nothing beats the peace of mind you get when you know that your baby is being well-taken of care—and well fed—until you can be together again. The Philips Avent Natural Baby Bottle Newborn Starter Gift Set is a fan favorite (mama and baby fans alike).

This article is sponsored by Walmart. Thank you for supporting the brands that support Motherly and mamas.

Our Partners

Motherly is committed to covering all relevant presidential candidate plans as we approach the 2020 election. We are making efforts to get information from all candidates. Motherly does not endorse any political party or candidate. We stand with and for mothers and advocate for solutions that will reduce maternal stress and benefit women, families and the country.

Coverage:

A viral video about car seat safety has parents everywhere cracking up and humming Sir-Mix-A-Lot.

"I like safe kids and I cannot lie," raps Norman Regional Health System pediatric hospitalist Dr. Kate Cook (after prefacing her music video with an apology to her children."I'm a doctor tryin' warn you that recs have changed," she continues.

Dr. Cook's rap video is all about the importance of keeping babies facing backward. It's aptly called "Babies Face Back," and uses humor and parody to drive home car seat recommendations from the American Academy of Pediatrics (AAP).

"Switching from rear-facing to forward-facing is a milestone many parents can't wait to reach," Dr. Cook said in a news release about her hilarious video. "But this is one area where you want to delay the transition as long as possible because each one actually reduces the protection to the child."

Last summer the AAP updated its official stance on car seat safety to be more in line with what so many parents were already doing and recommended that kids stay rear-facing for as long as possible. But with so many things to keep track of in life, it is understandable that some parents still don't know about the change. Dr. Cook wants to change that with some cringe-worthy rapping.

The AAP recommends:

  • Babies and toddlers should ride in a rear-facing car safety seat as long as possible, until they reach the highest weight or height allowed by their seat.
  • Once they are facing forward, children should use a forward-facing car safety seat with a harness for as long as possible. Many seats are good up to 65 pounds.
  • When children outgrow their car seat they should use a belt-positioning booster seat until the vehicle's lap and shoulder seat belt fits properly, between 8 and 12 years old.

You might also like:

News

[Editor's note: Motherly is committed to covering all relevant presidential candidate plans as we approach the 2020 election. We are making efforts to get information from all candidates. Motherly does not endorse any political party or candidate. We stand with and for mothers and advocate for solutions that will reduce maternal stress and benefit women, families and the country.]

Suicide rates for girls and women in the United States have increased 50% since 2000, according to the CDC and new research indicates a growing number of pregnant and postpartum women are dying by suicide and overdose. Suicide rates for boys and men are up, too.

It's clear there is a mental health crisis in America and it is robbing children of their mothers and mothers of their children.

Medical professionals urge people to get help early, but sometimes getting help is not so simple. For many Americans, the life preserver that is mental health care is out of reach when they are drowning.

Democratic presidential candidate Pete Buttigieg just released a plan he hopes could change that and says the neglect of mental health in the United States must end. "Our plan breaks down the barriers around mental health and builds up a sense of belonging that will help millions of suffering Americans heal," says Buttigieg.

He thinks he can "prevent 1 million deaths of despair by 2028" by giving Americans more access to mental health and addictions services.

In a country where giving birth can put a mother in debt, it's not surprising that while as many as 1 in 5 new moms suffers from perinatal mood and anxiety disorders, more than half of new moms who need mental health treatment don't get it. Stigma, childcare and of course costs are factors in why women aren't seeking help when they are struggling.

Buttigieg's plan is interesting because it could remove some of these barriers. He wants to make mental health care more affordable by ensuring everyone has comprehensive coverage for mental health care and by ensuring that everyone can access a free yearly mental health check-up.

That could make getting help more affordable for some moms, and by increasing reimbursement rates for mental health care delivered through telehealth, this plan could help moms get face time with a medical professional without having to deal with finding childcare first.

Estimates from new research suggest that in some parts of America as many as 14% or 30% of maternal deaths are caused by addiction or suicide. Buttigieg's plan aims to reduce those estimates by fighting the addiction and opioid crisis and increasing access to mental health services in underserved communities and for people of color. He also wants to reduce the stigma and increase support for the next generation by requiring "every school across the country to teach Mental Health First Aid courses."

These are lofty goals with a lofty price tag. It would cost about $300 billion to do what Buttigieg sets out in his plan and the specifics of how the plan would be funded aren't yet known. Neither is how voters will react to this 18-page plan and whether it will help Buttigieg stand out in a crowded field of Democratic candidates.

What we do know is that right now, America is talking about mental health and whether or not that benefits Buttigieg's campaign it will certainly benefit America.

You might also like:

News

[Editor's Note: Welcome to It's Science, a Motherly column focusing on evidence-based explanations for the important moments, milestones, and phenomena of motherhood. Because it's not just you—#itsscience.]

If you breastfeed, you know just how magical (and trying) it is, but it has numerous benefits for mama and baby. It is known to reduce the likelihood of developing cardiovascular disease, type 2 diabetes, and rheumatoid arthritis, and cuts the risk of sudden infant death syndrome (SIDS) by half.

If this wasn't powerful enough, scientists have discovered that babies who are fed breast milk have a stomach pH that promotes the formation of HAMLET (Human Alpha-lactalbumin Made Lethal to Tumor cells). HAMLET was discovered by chance when researchers were studying the antibacterial properties of breast milk. This is a combination of proteins and lipids found in breast milk that can work together to kill cancer cells, causing them to pull away from healthy cells, shrink and die, leaving the healthy cells unaffected.

According to researchers at Lund University in Sweden, this mechanism may contribute to the protective effect breast milk has against pediatric tumors and leukemia, which accounts for about 30% of all childhood cancer. Other researchers analyzed 18 different studies, finding that "14% to 19% of all childhood leukemia cases may be prevented by breastfeeding for six months or more."

And recently, doctors in Sweden collaborated with scientists in Prague to find yet another amazing benefit to breast milk. Their research demonstrated that a certain milk sugar called Alpha1H, found only in breast milk, helps in the production of lactose and can transform into a different form that helps break up tumors into microscopic fragments in the body.

Patients who were given a drug based on this milk sugar, rather than a placebo, passed whole tumor fragments in their urine. And there is more laboratory evidence to support that the drug can kill more than 40 different types of cancer cells in animal trials, including brain tumors and colon cancer. These results are inspiring scientists to continue to explore HAMLET as a novel approach to tumor therapy and make Alpha1H available to cancer patients.

Bottom line: If you choose to breastfeed, the breast milk your baby gets from your hard work can be worth every drop of effort.

You might also like:

Life
Motherly provides information of a general nature and is designed for educational purposes only. This site does not provide medical advice, diagnosis or treatment.Your use of the site indicates your agreement to be bound by our  Terms of Use and Privacy Policy. Information on our advertising guidelines can be found here.