A modern lifestyle brand redefining motherhood

The unexpected gifts that came along with my daughter’s special needs

Print Friendly and PDF

My fiery little light was born eight days after her due date, the exact same timing as her older brother.


Her entrance into this world was much like a Super Bowl half-time show—there was explosive excitement and the show ended nearly as quickly as it began. She made her swift appearance with purpose, intention and a fury of determination.

It’s a day that I’ll forever remember as a day filled with pride in my most instinctive natural abilities as a woman.

Two weeks later my daughter was diagnosed with cystic fibrosis (CF).

I’ll forever remember this as the worst day of my life, the day that my heart shattered and a small amount of joy crept from my innermost being.

The following weeks were filled with tears, doctor visits, specialists, battles with insurance over our move to a new state and more grief than any individual should ever be forced to bear. Not only was I a sleepless, hormonal mother trying to adjust to her second child, but we had moved 1,000 miles for a new job when my daughter was just 5 weeks old.

I don’t know how else to describe the emotional pain other than to say that it was suffocating and most days felt like more than I could handle.

FEATURED VIDEO

I spent the first eight months of my daughter’s life frantically researching alternative therapies for CF. I knew almost nothing about it, but quickly accepted it as an incurable genetic disease severely impacting the lungs and pancreas. CF is a disease that requires an abnormally large investment of time in order to stay well, which required that we abruptly acclimate to our new norm of morning and night chest physical therapy, nebulized medications and a whole slew of supplements and herbs that are helping to support my daughter’s health.

Adjusting to life with a second child felt hard enough, but accepting this new reality was even harder.

At some point during the latter part of my daughter’s first year I was able to start talking about her disease without immediately bursting into tears. The open wounds weren’t feeling as tender and I was able to see my daughter as a vibrant being, not just a person with the limitations of disease. When your child is so young and you’re so overwhelmed by the intensity of their care it’s hard to view them in any capacity beyond needing your help. But, as she grew older, I got to know the energetic little human that has become my greatest inspiration in life.

I’m learning that the most tumultuous events in life also present the greatest gifts, a truth that a friend once called “the gifts from the darkness.”

Her hope was that as I grew accustomed to disease management that I would begin to see the most beautiful rainbow emanate out from the grey cloud that enveloped my family.

What can I say? There’s nothing like a life-shortening disease to teach you about gratitude for the things that matter most in life. Since having my daughter, my family has made some major changes.

We’ve adopted a minimalist approach to living in that we’ve gotten rid of most of the clutter that prevented us from engaging in activities that are truly meaningful.

Our diet was good, but not this good. I believe that basic self-care through diet, exercise, stress management,and sleep exist at the cornerstone of health for every individual, especially those suffering from disease. My commitment to this diet got me a book deal from a major publishing company last year.

My daughter just spent her second birthday admitted to the hospital for IV antibiotics and all I could think about was how much my husband and I argued before her admission. I’m now stepping back from work to spend more time enjoying my family and nurturing the most important relationships in my life.

I have a new perspective on what’s important and my family is a top priority.

I exercise almost daily. Enhanced fitness will be hugely beneficial for my daughter, so I’m trying to set the bar that I hope she surpasses.

I could go on to tell you about the other numerous gifts such as faith, intuition and confidence that have emerged from this darkness, but I have to admit that when I take time to reflect on the improvements that had been made in my family’s life, I can’t help but think that it’s at the expense of my daughter.

I feel guilty that our gain is from her loss. Life just doesn’t feel fair.

Will my daughter grow to resent these gifts? Or will she learn to embrace the goodness that can come from such devastation? Only time will tell, but, for now, I’m going to continue to grow in my relationship with her and her disease in a healthy way that promotes strength, compassion, and gratitude. I’m going to mindfully push these thoughts of guilt out of my head, because the guilt perpetuates life in the darkness. I want to teach her to find inner strength from her disease, which means I also need to find strength from her disease.

As parents, we have to learn to set the example we hope our children follow. For me, in this chapter of life, it means embracing the gifts from the darkness and being thankful that life has taken this unexpected course.

It means choosing to live in the light, even when the darkness is nearby.

Who said motherhood doesn't come with a manual?

Subscribe to get inspiration and super helpful ideas to rock your #momlife. Motherhood looks amazing on you.

Already a subscriber? Log in here.

Sometimes it can feel like toys are a mama's frenemy. While we love the idea of entertaining our children and want to give them items that make them happy, toys can end up taking the joy out of our own motherhood experience. For every child begging for another plastic figurine, there's a mama who spends her post-bedtime hours digging toys out from under the couch, dining room table and probably her own bed.

Like so many other moms, I've often found myself between this rock and hard place in parenting. I want to encourage toys that help with developmental milestones, but struggle to control the mess. Is there a middle ground between clutter and creative play?

Enter: Lovevery.

lovevery toys

Lovevery Play Kits are like the care packages you wish your child's grandparent would send every month. Expertly curated by child development specialists, each kit is crafted to encourage your child's current developmental milestones with beautiful toys and insightful activity ideas for parents. A flip book of how-tos and recommendations accompanies each box, giving parents not only tips for making the most of each developmental stage, but also explaining how the games and activities benefit those growing brains.

Even better, the toys are legitimately beautiful. Made from eco-friendly, sustainable materials materials and artfully designed, I even find myself less bothered when my toddler leaves hers strewn across the living room floor.

What I really love, though, is that the kits are about so much more than toys. Each box is like a springboard of imaginative, open-ended play that starts with the included playthings and expands into daily activities we can do during breakfast or while driving to and from lessons. For the first time, I feel like a company isn't just trying to sell me more toys―they're providing expert guidance on how to engage in educational play with my child. And with baby kits that range from age 0 to 12 months and toddler kits for ages 13 to 24 months, the kits are there for me during every major step of development I'll encounter as a new mama.

So maybe I'll never love toys―but I will always love spending time with my children. And with Lovevery's unique products, mixing those worlds has become child's play.


This article was sponsored by Lovevery. Thank you for supporting the brands that support Motherly and mamas.

Our Partners

Breastfeeding is not easy. But neither is weaning. That's why this powerful photo from Brazilian mama Maya Vorderstrasse is going viral. Her husband captured the first time she ever breastfed their second daughter and next to it, almost two years later, the last time she fed their daughter from her breast.

And it's not just the photo that is powerful. In her caption Maya shares her emotional struggles with weaning and the tricks they used to make this transition easier for their youngest daughter. The caption reads:

"The first and last time my precious daughter ever nursed.

I didn't know that one person could feel so proud and so broken at the same time, right now I am a hormonal, emotional, and mental mess.

Raising my arm in this picture was very difficult for me as I had to fight through uncontrollable tears: this picture meant that I would never breastfeed my daughter ever again. I have been nursing for so long, that I don't know what it's like to not nurse anymore.



As I looked behind the camera, my husband is crying like I had never seen him cry before, like seriously, a deep gut cry. I was her comfort, her safe place, and I hope she still finds me that way. A month shy of 2 years old, she finally has a bed in a shared bedroom with her sister. We bought her her first bed, used any distraction we could come up with, snacks and new toys to keep her mind off of it.

My husband has taken over bedtime completely, including all nighttime wakings. We are on our third day, and every day gets a little bit easier. The guilt I feel for not putting her to bed is so intense and I can't wait to go back to it once she doesn't ask to nurse anymore. Closing a chapter is painful, but I am hopeful that this new season of our lives will also be special in its own way.

Through this maturation step she will not only grow more independent, but I will get a much needed break. She unlatched for the last time and sobbingly I said to my husband: "I did my best". He hugged me and responded with: "No. You did THE best, because you gave her your all". I love my family and am so thankful for such special and unforgettable moments like these. 💛

*my lazy boob has no clue about what's going on, but thoughts and prayers are accepted for my good one, I really think it might explode🤱🏻

**thank you to my husband, for insisting on filming this, I will treasure this forever.🤳🏼👩"

You've got this mama!

You might also like:

Life

If you're looking for basics for the kids for summer, you're in luck, mama. Primary clothes don't have logos or sparkles—they're classic prints and colors that can easily transition from one kid to the next. And this week, Primary is celebrating the new season with a major summer sale.

Items, like swimsuits, dresses, polos and more, are over 50% off. Most pieces are under $10 so you can stock up on an entire new wardrobe without breaking the budget.

Here's what we're adding to our carts—shop the entire sale here:

1. Baby rainbow stripe rash guard

With UPF 50, you can rest easy knowing baby has extra protection outdoors.

$14.50

SHOP

2. The track short

The easy pull-on waist will make outfit changes a breeze.

$10.50

SHOP

3. Rainbow stripe one-piece

Cute? Check. Will stay in place? Check. UPF 50? Check.

$18.00

SHOP

4. The short sleeve twirly dress

Made of 100% cotton jersey, this one will be a staple all summer long.

$10.00

SHOP

5. The polo babysuit

Perfect to dress up or down.

$8.00

SHOP

Motherly is your daily #momlife manual; we are here to help you easily find the best, most beautiful products for your life that actually work. We share what we love—and we may receive a commission if you choose to buy. You've got this.

You might also like:

Shop

Being an adult is no joke. Beyond dressing ourselves and our kids and, ya know, feeding and bathing everyone, there are so many other things that life throws at us. And because we're adults, we have to take care of these myriad to-dos. Welcome to: Adulting!

I'm not just talking laundry, filling up your car's gas tank and stocking the fridge with groceries. Getting life insurance. Refinancing your loan debt. (Students loans? Us, too.) Marriage counseling. Yep—I'm talking about all the cringe-inducing to-dos that you've likely been putting off for a few months… or years.

But guess what? Because it's 2019 and a little something called technology exists, these seemingly heavy-lift tasks are now a whole lot easier and faster to tackle. Here's how to check off your most tedious adulting chores.

The life insurance

When you're a single with no descendants, life insurance doesn't seem like a top priority. But when you suddenly have a kid (or three), setting your family up for longterm financial success is a must. And thanks to Ladders, obtaining a policy isn't the taxing, cringe-inducing process it used to be! Modern and so easy to use—seriously, you can even get one from your phone or tablet—Ladders makes it possible to obtain a policy in under five minutes. Yes, really. See? No need to procrastinate!

SHOP

The student loan redux

You have the degree and the career—and you also have the debt. And like us, you're likely just paying your monthly minimums without a thought to ever refinancing your student loans. Because that sounds hard and complicated, right? Right. Not so with help from Laurel Road, however. On this straight-forward site you can check your rates in only a few minutes —fear not, doing so won't impact to your credit score!—and refinance your debt, saving yourself (and your family) thousands of dollars.

SHOP

The marriage counselor

Did you know that 66% of couples report a drop in marital satisfaction when new arrives? It's not surprising considering the stress an infant creates for mamas alone, but all that pressure affects your relationship, too. But taking the time to really invest in marriage counseling often falls to the bottom of the to-do lists because of the many hurdles—finding a therapist, traveling to appointments, the cost of copays or out-of-pocket fees, the stigma of need therapy. With Lasting, however, you and your partner pair your apps and can begin working on your relationship together on your own timeline.

SHOP

Motherly is your daily #momlife manual. We share what we love—and we may receive a commission if you choose to buy. You've got this.

You might also like:

Life

A lot of women are literally walking around in fashion mogul Jessica Simpson's shoes, but there was no way she was going to be getting her feet into any of the footwear with her name on while she was pregnant.

A few months ago, back when she was still super pregnant with her third child, Simpson posted a photo of her left foot on Instagram and honestly, just looking at it was painful.

"Any remedies?! Help!!!!" she captioned the pic of her incredibly swollen ankle and foot. Thankfully, now that she's in her fourth trimester and no longer pregnant, Simpson's feet have chilled out. She posted a new pic with the caption: "I spy....my ankles!!!!

Before + after

The commenters on Instagram are now as happy for Jessica as they were were as shocked back when she posted the first foot photo.

"Omg Jessica call your Dr. Keep feet up lower salt intake and no heels," one wrote (although the last bit seems like it probably wouldn't be an option even if she wanted to wear them).

Calling the doctor is not a bad idea if your foot look's like Simpson's before photo, because swelling during pregnancy can be a sign of preeclampsia, according to the Preeclampsia Foundation, which notes that "a certain amount of swelling is normal during pregnancy," but suggests that moms-to-be watch out for "pitting edema" (which means that when you press on the skin an indentation stays for a bit) and leg discoloration.

"If you suspect this kind of edema, notify your healthcare provider. You should also put your feet up every day, but avoid sitting for extended periods of time," the foundation states on its website.

What mamas need to know about swollen feet

Simpson took her swelling with a sense of humor, posting a before and after pic of some super high wedges and her swollen pregnancy foot with the caption #tenyearchallenge, but swelling can be serious in pregnancy.

It can be related peripartum cardiomyopathy a rare kind of heart failure that can develop in the last month of pregnancy or in the first five months postpartum, but, according to the the American Heart Association, isn't easy to diagnose as the symptoms (like swollen ankles) are also symptoms of third trimester pregnancy.

So swelling is something to watch and definitely talk to a health care provider about—but it also happens in many uncomplicated pregnancies, as a lot of Jessica's IG followers pointed out. "That happened to me with my 1st pregnancy. Lots of elevation for my feet and fluids. Watch the sodium intake. Hang in there," one mama wrote, throwing in a 💞 emoji.

Jessica Simpson just launched a collection of flats 

Another commenter offered a funny story to put Jessica at ease: "My feet looked like this the last month of my pregnancy (if not worse) and I had normal BP and didn't have preeclampsia. I'm 5'0" and retained so much water. My OB-GYN at the time (a 65 year old man) told me that I had what he called "Fiona feet"....yep, the ogre from Shrek. Yep. 🤦🏼♀️ Needless to say, I switched doctors after my daughter was born."

Jessica Simpson's shoe collection currently includes a wedges, booties and a gorgeous stacked stiletto, and she recently launched a collection of flats, which should be helpful to all the mamas-to-be who have swollen feet (although not as swollen as hers were, she should design an extra-wide slipper for that season of life).

[A version of this post was originally published January 11, 2019. It has been updated.]

You might also like:

News
Motherly provides information of a general nature and is designed for educational purposes only. This site does not provide medical advice, diagnosis or treatment.Your use of the site indicates your agreement to be bound by our  Terms of Use and Privacy Policy. Information on our advertising guidelines can be found here.